{"id":1696,"date":"2019-06-11T23:44:09","date_gmt":"2019-06-12T03:44:09","guid":{"rendered":"http:\/\/activeseniorsdigest.ca\/wp_activeseniorsdigest\/?p=1696"},"modified":"2019-06-11T23:45:09","modified_gmt":"2019-06-12T03:45:09","slug":"lyme-disease-a-silent-epidemic","status":"publish","type":"post","link":"https:\/\/activeseniorsdigest.ca\/wp_activeseniorsdigest\/?p=1696","title":{"rendered":"Lyme disease: A silent epidemic"},"content":{"rendered":"

By Chris Jones\/Active Senior’s Digest<\/p>\n

With Lyme Disease Awareness Month now in the past, Linda Lowery hopes awareness regarding the disease will spread.<\/em>
\nLyme disease is a bacterial illness that affects people and animals. It spreads by the bite of an infected tick.<\/em>
\nHowever, according to Lowery there is so much more to it than that.<\/em><\/p>\n

A survivor of the debilitating disease herself, Lowery is now trying to help people be more informed about what will happen if they contract it, what they can do to prevent it, and what she says health providers aren’t telling people.<\/p>\n

An Oshawa resident, Lowery says she doesn\u2019t know how or when she contracted the disease as while she enjoys being outside, she has never considered herself an \u201coutdoorsy\u201d person.
\n\u201cA lot of people have to learn\u2026 people are really vulnerable right now,\u201d says Lowery.<\/p>\n

She says the important thing to remember about Lyme disease is there are also numerous co-infections which can come from the bite of the tick, such as Bartonella disease.<\/p>\n

She explains the condition was named after the town of Lyme, Connecticut.<\/p>\n

\u201cIt\u2019s been around for quite a while, but it\u2019s becoming a real health threat, and that\u2019s where I get concerned because people don\u2019t know enough about it to keep themselves safe,\u201d she explains.
\nShe says how it manifests will vary depending on where the bacteria has “lodged” in the body.
\n\u201cSo there\u2019s an arthritic line, there\u2019s a neurological line, Lyme carditis when it affects your heart, so it can really have a devastating impact \u2013 it does have a devastating impact on your body,\u201d she says.<\/p>\n

Lowery notes there is a divide on the issue of Lyme disease, with one side falling in line with the Infectious Disease Society of America, which she says \u201cour public health agency follows.\u201d
\nThe other side is where Lowery falls, and that is with the International Lyme and Associated Diseases Society.<\/p>\n

\"\"<\/a>\u201cAs I mentioned it can affect any part of your body,\u201d she further explains. \u201cThe ticks are everywhere. We might be told that it\u2019s just in wooded and grassy areas, but they are everywhere.\u201d<\/p>\n

Around the time she became infected, Lowery says her son suffered a \u201ccatastrophic brain injury\u201d in the autumn of 2008.<\/p>\n

\u201cIt was a very stressful journey helping him,\u201d she says. \u201cAs he started to get better, I noticed I wasn\u2019t. I was starting to get sicker and sicker, and at first, I thought it was due to just the severe stress I was under with my son, but then I started to get increasing numbers of symptoms.\u201d<\/p>\n

She began to have crushing fatigue to the point it was everything she could do to get out of a chair and function at all.<\/p>\n

\u201cTo get up to bed at night, I had to pull myself on the railing, and sometimes my husband had to come and help me go step-by-step to get upstairs,\u201d Lowery recalls. She also started having issues with her vision and her memory.<\/p>\n

\u201cMy memory, especially in that period, it\u2019s just like a black pit. I don\u2019t remember anything,\u201d she says. \u201cI used to be able to do presentations and just talk off the cuff. Now when I do a presentation, I need the PowerPoints and I need my notes to refer to.\u201d<\/p>\n

She says due to her experiences with Lyme disease, she still has extensive memory problems.
\nNext, she began experiencing numbness and tingling in her hands and feet.<\/p>\n

\u201cI would wake up at night \u2013 it still happens on occasion – and I would have no feeling, for example, in my hand. I could bite it and would not feel anything,\u201d she says. \u201cThen it started moving up my arm and I got really scared to go to bed at night because I was thinking \u2018this is paralysis\u2019…[and] it was going to creep up even further.\u201d<\/p>\n

Lowery also experienced severe insomnia, as she went several months only getting two to three hours of sleep every night, and couldn’t get any rest at all.<\/p>\n

\u201cDuring this period, when all these things were happening, I did not think at all of Lyme disease, even though my sister-in-law in British Columbia has Lyme and I was somewhat familiar with it,\u201d she says.<\/p>\n

According to Lowery, she saw five neurologists, a couple of cardiologists, \u201cyou name the specialist, I went.\u201d<\/p>\n

Every test she underwent showed there was nothing wrong.<\/p>\n

\u201cIt was to the point where the last neurologist I saw sat there looking at me, and I\u2019m sitting there feeling brain fog, I\u2019m feeling dizzy, no feeling in my feet, and he says, \u2018There\u2019s nothing wrong with you, you look fine,\u2019\u201d Lowery explains.<\/p>\n

Lowery explains it was very tough to hear because she\u2019s a “bright, capable, productive woman.\u201d<\/p>\n

\u201cIt was very difficult to have these specialists sit there and tell me I was fine and there was nothing wrong with me,\u201d she says.<\/p>\n

In January 2015, Lowery says she had begun to use a walker. She needed help getting up and to go to the bathroom.<\/p>\n

\u201cMy husband couldn\u2019t leave me alone,\u201d she says. \u201cI had to have babysitters with me all the time. I couldn\u2019t raise my eyes off the floor, I would feel terribly nauseated and incredibly dizzy.<\/p>\n

It was really, really scary and I was getting sicker.\u201d<\/p>\n

She says at that point she was afraid she was going to die.<\/p>\n

\u201cI really, really felt that was the course I was on,\u201d she says.<\/p>\n

She says a connection she had within a hospital in Toronto asked her for all of her records and gave them to another neurosurgeon.<\/p>\n

\u201cThe neurosurgeon took all of my records home, and said to me after reviewing them all, \u2018I don\u2019t understand what’s happening to you Linda, the only thing I can suggest to you is that you see a naturopath,\u2019 and that’s what I did,\u2019\u201d explains Lowery.<\/p>\n

She notes it was the naturopath who sent her blood to a lab in California, and it came back positive for Lyme disease, and she was diagnosed with two co-infections.<\/p>\n

\u201cMeanwhile, I had, just because I was curious and I knew my sister-in-law had Lyme disease, had asked for the Canadian test for Lyme disease in 2012, and it came back negative, so being na\u00efve I took that at face value and thought okay it isn\u2019t Lyme disease,\u201d she explains.<\/p>\n

It was very shocking for her when she found out she had Lyme disease, and she had no idea at that point what the diagnosis meant until the naturopath said to her, \u201cI\u2019m really, really sorry, Linda.\u201d<\/p>\n

After being diagnosed, Lowery says she had to travel to the United States and see two specialists in New York.<\/p>\n

She still sees the one specialist every three months, and she also sees naturopaths and others in Canada.<\/p>\n

\u201cIt\u2019s been quite a journey to begin to recover my life from Lyme disease,\u201d she says.<\/p>\n

Today her symptoms come and go, but she also suffers from anxiety and depression, which she says is common for those who suffer from Lyme disease.<\/p>\n

While she was shocked with her diagnosis, at least she knew \u201cwho the enemy was\u201d and could now fight back.<\/p>\n

\"\"<\/a>She says Lyme disease is one of those illnesses where people will often \u201cbrush it off\u201d because they don’t look sick, but that isn\u2019t always the case, noting in 2015 it was very obvious.<\/p>\n

Today, Lowery is trying to fight back against the misconceptions surrounding Lyme disease.
\nShe claims one such misconception is the idea one has to have a rash which is often circular or in the shape of a bulls-eye.<\/p>\n

Lowery says she never had that rash and believes this is part of the reason it took her so long to be diagnosed.<\/p>\n

\u201cIt\u2019s usually 50 per cent or under \u2013 as low as 30 per cent of people might get a bulls-eye rash,\u201d she explains. \u201cSo as long as they\u2019re giving that information to people to \u2018You\u2019re going to get a bulls-eye rash\u2019 and all this sort of stuff, people are going to be really at risk.\u201d<\/p>\n

She says ever since being diagnosed, she has had to make massive changes to the way she handles her health, such as blocking inflammation to her body through diet and nutrition.
\nShe notes she was on various medications for two-and-a-half years, ranging from antibiotics to anti-malarial drugs before she was finally able to move forward.<\/p>\n

According to Lowery she still takes a number of supplements each and every day.<\/p>\n

\u201cThe cost of this has been phenomenal, and I’m not alone in this,\u201d she says. \u201cI stopped adding up my out-of-pocket expenses at $75,000.\u201d<\/p>\n

She notes they\u2019ve had to re-mortgage their house in order to continue living there.<\/p>\n

\u201cI know families in Durham Region that have had to travel out of the country for extended periods of time,\u201d she says.<\/p>\n

Two of the families she knows had to travel to India, with another woman recently going to Mexico for eight weeks.<\/p>\n

She says these families are looking at roughly $100,000 for each of those trips, and that won\u2019t be the end of their treatment.<\/p>\n

\u201cPeople are losing their careers, they\u2019re losing their homes, they\u2019re losing their independence,\u201d she says.<\/p>\n

For Lowery, since her background was in project management and educating people about various topics, she decided to take Lyme disease on.<\/p>\n

In addition to trying to get well, she has been trying to shed a light on
\nthe disease, as she believes there is a lot of misinformation leaving people vulnerable.<\/p>\n

\u201cThere definitely isn\u2019t enough coming from health departments, from the public health agency of Canada, from the media,\u201d she explains.<\/p>\n

She explains partly due to climate change, ticks are coming further north and are extremely prevalent in the northeast United States.<\/p>\n

Looking at a map from Public Health Ontario, Lowery notes the map says the probability of encountering a tick with Lyme disease is low, but she believes otherwise.<\/p>\n

\u201cDurham Region is in a hotbed \u2013 up into Ottawa we’re in a hotbed,\u201d she says. \u201cNova Scotia is one of the worst areas in Canada for ticks and Lyme disease. So, the message is still getting out there that your risk is low, and it\u2019s not low.\u201d<\/p>\n

Since she is not a big outdoors person and she contracted Lyme disease, it should tell people that anybody is at risk, Lowery says.<\/p>\n

\u201cI have no idea where I was infected,\u201d she says. \u201cWhether it was here in Durham Region \u2013 we had a cottage up north \u2013 I have no idea where I was infected. I never saw a rash, I never saw a tick.\u201d<\/p>\n

She notes ticks are tiny, going so far as to say they are the size of a poppy seed, and she wonders what the chances are someone will actually find a tick on their body, especially since they like to crawl to dark, moist areas on the body.<\/p>\n

\u201cWhat\u2019s the chance of you finding one, and being able to remove it? Very, very rare,\u201d she says. \u201cWhat\u2019s the chance of you seeing a bulls-eye rash on your body? It could be on your back. You live alone? Who’s going to see it? It could be in your hair.\u201d<\/p>\n

For those who wish to avoid getting Lyme disease, Lowery says there is a lot they can do.
\nLowery notes she often gets one to three calls every week regarding Lyme disease where people ask for advice.<\/p>\n

She says while she doesn\u2019t give people medical advice as she isn’t a medical professional, Lowery is happy to give people advice based on her personal journey.<\/p>\n

She notes while not everyone may be willing to do this, people can wear pants during the summer, even going so far to close off the bottom of their pant legs, and people should also wear closed-toe shoes.<\/p>\n

Lowery notes there is so much more people can do, and they can find more at websites such as https:\/\/canLyme.com\/Lyme-prevention\/<\/p>\n","protected":false},"excerpt":{"rendered":"

By Chris Jones\/Active Senior’s Digest With Lyme Disease Awareness Month now in the past, Linda Lowery hopes awareness regarding the disease will spread. Lyme disease […] Read More<\/a><\/span><\/p>\n","protected":false},"author":1,"featured_media":1652,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"spay_email":"","jetpack_publicize_message":"","jetpack_is_tweetstorm":false},"categories":[8],"tags":[],"yoast_head":"\nLyme disease: A silent epidemic - Active Senior's Digest<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/activeseniorsdigest.ca\/wp_activeseniorsdigest\/?p=1696\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Lyme disease: A silent epidemic - Active Senior's Digest\" \/>\n<meta property=\"og:description\" content=\"By Chris Jones\/Active Senior’s Digest With Lyme Disease Awareness Month now in the past, Linda Lowery hopes awareness regarding the disease will spread. 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